Tuesday, January 12, 2010

Keeping up

Needless to say, I have been super busy with work, part-times, family, and circumstances. Not to mention shoveling the snow and melting the ice that has built up on our roof from the two massive blizzards in Dec. And yes, I am shoveling snow off my roof, twice it was as high as mid-thigh. If I am not able to complete another historical post soon, I should be able to finish one or two while we are at the Mayo Clinic this next week.

Keep our X in prayer, on Monday he meets with a Pediatric Neuro-Psychologist, Dr. Zaccariello to do a cognitive function test to assess where he is cognitively, so basically they will have him draw, color, ask him age appropriate school type questions & just overall watch him be a five year old. This is one step they take to make sure he is a good candidate for surgery. Some of the tests that they do with him during this time they will also do after they put the grid on his brain (before the actual resection). They will do this to test that area of his brain to check & see if when/if it is removed he will still be able to answer the questions the way he did before surgery. Does that kinda make sense? We don't have a super clear understanding of it but that leads us to appointment number 2 on Tuesday with the Neuro-Surgeon Dr. Wetjen. At this appointment we will learn all of the nitty gritty of all of the surgeries. Then on to appointment number 3 with the epileptoligist Dr. Wirrell & I am not sure what that one is for exactly.

We are anxious as the days approach, ready to move on from this time and into the next "adventure". We are taking our twins up with us this time, the last time we went and did not take them it was sad. X asked for his "Brudders" and my mom told me that the twins would go into X's room and ask for him. When we finally made it back home they shrieked with joy, and wouldn't stop hugging all of us. I hope they do well since they will be staying with Travis' mom, who is such a sweet woman, and has her own daycare.

One last thing, my wife finally was able to contact the Turners of AZ. The Christian family who helped us not "feel" all alone in this and inspired me to start this after finding their website. I would ask that all our friends and family pray for their sweet Hannah. I know we have people all over the world praying for X, so would you pray for her too. She told Sarah that they have people praying for Hannah worldwide as well, and would put X on that prayer-chain. I want to do the same for them. Thanks in advance, and you guys are the greatest.


  1. Hey this is Jen, your cousin Mason's wife.
    You know, you could get a button made with your son's picture on it and have it posted on your blog. Have the code available for others to copy it to their blog and get the word out in that avenue. I'd be happy to put it on my blog, but alas, I don't know how to make one. I had a friend's daughter make mine for me. If it's something you're interested in I'd be happy to see if she can make one for you. There are several people out in bloggy world who have those.

  2. Jen, that would be great. I am not a big computer guy so if you could ask your friend I would apprieciate it. Tell Mason I said hi, and that I thought he was so cool growing up with his long hair that I grew mine out. If you have a blog, or family website I'd love to join/see it.